Patients as Partners Europe

Nichola Gokool, Senior Director, Patient Partnerships, Parexel

Showing Events in 1 Track from 09:05am to 09:35am

Morning Keynote

9:05AM - 9:35AM

Keynote: Learning and Collaborating from A Patient Perspective and the Power of Overcoming Adversity

Keynote:

Emma Lawton, Patient Advocate and Co-Founder, More Human

Showing Events in 1 Track from 09:35am to 10:30am

Simplifying Clinical Trials for Patients

9:35AM - 9:55AM

Patient Engagement Impact Measurement Role in Standardizing Patient Engagement

Zack Pemberton-Whiteley, Executive Director, Global Patient Engagement Centre of Excellence, Novartis

9:55AM - 10:15AM

Simplicity in Technology Delivery for Clinical Trials

Geraldine Grove, Senior Director, AstraZeneca

Ewa McHale, Director, Global Clinical Solutions, AstraZeneca

10:15AM - 10:30AM

The Business Case for Patient Engagement

Richie McCann, Global Head, Site Payments & Budgeting, Greenphire

Showing Events in 1 Track from 10:30am to 11:00am

Networking Break and Meet the Exhibitors

10:30AM - 11:00AM

Networking Break and Meet the Exhibitors

Showing Events in 1 Track from 11:00am to 11:40am

Day 2 Morning General Session Continued

11:00AM - 11:20AM

Medical Evidence Centricity Framework for Improved Patient Engagement and Outcomes

Ana Marija Gjurovic, MD. MSc., Global Head Patient Engagement BioPharmaceutical, AstraZeneca

11:20AM - 11:40AM

Patient Insight Reporting: Proactively Sharing Updates and a Lay Summary of Results to Trial Participants

Annie Gilbert, Global Patient and Site Engagement Lead, Boehringer Ingelheim

Showing Events in 1 Track from 11:40am to 12:35pm

Afternoon Interactive Session

11:40AM - 12:20PM

Implementing a Patient Insights Framework to Enhance Clinical Development and Patient Engagement

Sarah Lucas-Eaton, Patient Strategy Director, Lumanity

Nichola Gokool, Senior Director, Patient Partnerships, Parexel

Samantha Knott, Global Patient Partnership Leader, Roche

Emma Lane, PhD, Global Patient Engagement Lead, UCB Pharma

12:20PM - 12:35PM

Mind the Diversity Gap: Strategies for Expanding Inclusion and Addressing Data Privacy Concerns

Xoli Belgrave, Senior Director, Global Head of Patient Inclusion, Parexel International Inc

Showing Events in 1 Track from 12:35pm to 01:25pm

Lunch

12:35PM - 1:25PM

Lunch

Showing Events in 1 Track from 01:30pm to 03:00pm

Advancing Diversity Through Patient Community Connections & Learnings

1:30PM - 1:55PM

Demystifying and Diversifying Clinical Trials to Engage Underserved Communities

David James, Director of Patient Projects, Prostate Cancer Research

Learnings from Pfizer’s LGBTQ+ Cancer Patient Advisory Board on Inclusivity in Clinical Trial Design and Delivery

1:55PM - 2:15PM

Patrick Gallogly, Medical Advisor, Pfizer Ltd

2:15PM - 3:00PM

Debunking Myths to Advance Diversity, Equity and Inclusion in Clinical Trials

Heidi Green, PhD, MSci, Director of Health Research Equity, COUCH Health

Sharan Khela, Patient Advocate and Board of Directors, South Asian IBD Alliance (SAIA)

Robina Weermeijer, Global Patient and Site Engagement Lead Diversity, Boehringer-Ingelheim

Daniel Newman, Patient, Advocate

Emily Clifford, MSPH, Senior Project Manager, Research Services, Center for Information & Study on Clinical Research Participation (CISCRP)

Rubi Rodriguez Nieto, Patient, Advocate

Showing Events in 1 Track from 03:00pm to 03:15pm

Afternoon Tea Networking Break

3:00PM - 3:15PM

Afternoon Tea Networking Break

Showing Events in 1 Track from 03:15pm to 04:00pm

Patient Involvement in Early-Stage Research and Co-Authoring Publications with Patients

3:15PM - 3:35PM

How Roche is Maximizing the Impact of Patient Insights in Early Development Setting the Blueprint for De-risking Molecule Development

Léa-Isabelle Proulx, Ph.D., MBA, Patient Voice Partner, Strategy, Portfolio & Clinical Operations (SP&CO), Roche Pharma Research and Early Development (pRED)

3:35PM - 4:00PM

Co-Authoring Plain Language Publications with Patients and Carers: The Benefits and Challenges

Sally Dews, Director, Global Patient Advocacy and External Partnerships, Pfizer UK

Rachel Daley, Founder, The Positivitree

Sarah Griffiths, PhD, Communications Director, Patient Engagement, Oxford PharmaGenesis

Showing Events in 1 Track from 04:00pm to 04:55pm

e-Consent Progress and Disease Awareness Programs

4:00PM - 4:20PM

e-Consent Transformation: Putting Value First

Hilde Vanaken, PhD, Eng, MsC, Head of EFGCP eConsent Initiative, European Forum for Good Clinical Practice

4:20PM - 4:45PM

Using Patient Insights to Inform the Design of a Real World Prospective Observational Study

Emily Hardie, Senior Clinical Research Associate, Kyowa Kirin International

Susan Thornton, CEO, Cutaneous Lymphoma Foundation

4:45PM - 4:55PM

Co-Chairs Closing Remarks

Showing Events in 1 Track from 08:30am to 09:05am

Day 2 Morning Remarks

8:30AM - 8:50AM

Continental Breakfast and Meet the Exhibitors

8:50AM - 9:05AM

Welcome Remarks

Co-Chairs:

Victoria DiBiaso, MPH, VP, Head of Patient Informed Development & Health Value Translation, Sanofi

Nichola Gokool, Senior Director, Patient Partnerships, Parexel

Showing Events in 1 Track from 09:05am to 09:35am

Morning Keynote

9:05AM - 9:35AM

Keynote: Learning and Collaborating from A Patient Perspective and the Power of Overcoming Adversity

Keynote:

Emma Lawton, Patient Advocate and Co-Founder, More Human

Showing Events in 1 Track from 09:35am to 10:30am

Simplifying Clinical Trials for Patients

9:35AM - 9:55AM

Patient Engagement Impact Measurement Role in Standardizing Patient Engagement

Zack Pemberton-Whiteley, Executive Director, Global Patient Engagement Centre of Excellence, Novartis

9:55AM - 10:15AM

Simplicity in Technology Delivery for Clinical Trials

Geraldine Grove, Senior Director, AstraZeneca

Ewa McHale, Director, Global Clinical Solutions, AstraZeneca

10:15AM - 10:30AM

The Business Case for Patient Engagement

Richie McCann, Global Head, Site Payments & Budgeting, Greenphire

Showing Events in 1 Track from 10:30am to 11:00am

Networking Break and Meet the Exhibitors

10:30AM - 11:00AM

Networking Break and Meet the Exhibitors

Showing Events in 1 Track from 11:00am to 11:40am

Day 2 Morning General Session Continued

11:00AM - 11:20AM

Medical Evidence Centricity Framework for Improved Patient Engagement and Outcomes

Ana Marija Gjurovic, MD. MSc., Global Head Patient Engagement BioPharmaceutical, AstraZeneca

11:20AM - 11:40AM

Patient Insight Reporting: Proactively Sharing Updates and a Lay Summary of Results to Trial Participants

Annie Gilbert, Global Patient and Site Engagement Lead, Boehringer Ingelheim

Showing Events in 1 Track from 11:40am to 12:35pm

Afternoon Interactive Session

11:40AM - 12:20PM

Implementing a Patient Insights Framework to Enhance Clinical Development and Patient Engagement

Sarah Lucas-Eaton, Patient Strategy Director, Lumanity

Nichola Gokool, Senior Director, Patient Partnerships, Parexel

Samantha Knott, Global Patient Partnership Leader, Roche

Emma Lane, PhD, Global Patient Engagement Lead, UCB Pharma

12:20PM - 12:35PM

Mind the Diversity Gap: Strategies for Expanding Inclusion and Addressing Data Privacy Concerns

Xoli Belgrave, Senior Director, Global Head of Patient Inclusion, Parexel International Inc

Showing Events in 1 Track from 12:35pm to 01:25pm

Lunch

12:35PM - 1:25PM

Lunch

Showing Events in 1 Track from 01:30pm to 03:00pm

Advancing Diversity Through Patient Community Connections & Learnings

1:30PM - 1:55PM

Demystifying and Diversifying Clinical Trials to Engage Underserved Communities

David James, Director of Patient Projects, Prostate Cancer Research

Learnings from Pfizer’s LGBTQ+ Cancer Patient Advisory Board on Inclusivity in Clinical Trial Design and Delivery

1:55PM - 2:15PM

Patrick Gallogly, Medical Advisor, Pfizer Ltd

2:15PM - 3:00PM

Debunking Myths to Advance Diversity, Equity and Inclusion in Clinical Trials

Heidi Green, PhD, MSci, Director of Health Research Equity, COUCH Health

Sharan Khela, Patient Advocate and Board of Directors, South Asian IBD Alliance (SAIA)

Robina Weermeijer, Global Patient and Site Engagement Lead Diversity, Boehringer-Ingelheim

Daniel Newman, Patient, Advocate

Emily Clifford, MSPH, Senior Project Manager, Research Services, Center for Information & Study on Clinical Research Participation (CISCRP)

Rubi Rodriguez Nieto, Patient, Advocate

Showing Events in 1 Track from 03:00pm to 03:15pm

Afternoon Tea Networking Break

3:00PM - 3:15PM

Afternoon Tea Networking Break

Showing Events in 1 Track from 03:15pm to 04:00pm

Patient Involvement in Early-Stage Research and Co-Authoring Publications with Patients

3:15PM - 3:35PM

How Roche is Maximizing the Impact of Patient Insights in Early Development Setting the Blueprint for De-risking Molecule Development

Léa-Isabelle Proulx, Ph.D., MBA, Patient Voice Partner, Strategy, Portfolio & Clinical Operations (SP&CO), Roche Pharma Research and Early Development (pRED)

3:35PM - 4:00PM

Co-Authoring Plain Language Publications with Patients and Carers: The Benefits and Challenges

Sally Dews, Director, Global Patient Advocacy and External Partnerships, Pfizer UK

Rachel Daley, Founder, The Positivitree

Sarah Griffiths, PhD, Communications Director, Patient Engagement, Oxford PharmaGenesis

Showing Events in 1 Track from 04:00pm to 04:55pm

e-Consent Progress and Disease Awareness Programs

4:00PM - 4:20PM

e-Consent Transformation: Putting Value First

Hilde Vanaken, PhD, Eng, MsC, Head of EFGCP eConsent Initiative, European Forum for Good Clinical Practice

4:20PM - 4:45PM

Using Patient Insights to Inform the Design of a Real World Prospective Observational Study