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Patients as Partners Europe

Date: May 20, 2025 - May 21, 2025

Location: London, UK

Day 1: Tuesday, May 20, 2025
Showing Events in 1 Track from 08:15am to 09:00am
Registration and Morning Remarks Galleon Suites B & C
8:15AM - 8:50AM
Registration and Coffee/Tea
8:50AM - 9:00AM
Co-Chair Welcome
Co-Chairs:
Victoria DiBiaso, MPH, VP, Head of Patient Informed Development & Health Value Translation, Sanofi
Wafae Iraqi, PharmD, PhD, EMEA Patient Engagement Therapeutic Area Lead, Johnson & Johnson Innovative Medicine
Paul Isherwood, Senior Director, Patient Strategy and Insights, Parexel
Alfred Samuels, Patient, Advocate and Author
Showing Events in 1 Track from 09:00am to 10:55am
Patient Engagement & Preferences in Clinical Research Galleon Suites B & C
9:00AM - 9:25AM
Transition from Patient Centricity to Integrated Patient Engagement
Speaker:
Victoria DiBiaso, MPH, VP, Head of Patient Informed Development & Health Value Translation, Sanofi
9:25AM - 9:50AM
Patient Keynote on How a Clinical Trial Saved a Life and What Industry Must Prioritize
Speaker:
Harry Verbunt, CPO, E-Patient, Patient Advocate, Cancer Connect
9:50AM - 10:00AM
Patient Physician Journey
Speaker:
Temi Olonisakin, MD, Patient, Advocate
Moderator:
Valerie Bowling, Director, Patients as Partners EU
10:00AM - 10:30AM
Patient Perspectives on their Fears and Preferences in Clinical Research
Moderated By:
Andrew Garvey, Global Patient Advocacy Lead, GSK
Panelists:
Daniel Newman, Patient, Advocate
Temi Olonisakin, MD, Patient, Advocate
Alfred Samuels, Patient, Advocate and Author
Harry Verbunt, CPO, E-Patient, Patient Advocate, Cancer Connect
10:30AM - 10:45AM
How to Integrate Patients Throughout Clinical Development
Speaker:
Paul Isherwood, Senior Director, Patient Strategy and Insights, Parexel
10:45AM - 10:55AM
Patient Burden-Reducing Solutions and Technologies, An Audience “Pop-Up” Session
Moderated by:
Valerie Bowling, Director, Patients as Partners EU
Showing Events in 1 Track from 10:55am to 11:25am
Morning Networking with Tea/Coffee and Biscuits
10:55AM - 11:25AM
Morning Networking with Tea/Coffee and Biscuits
Showing Events in 1 Track from 11:25am to 12:30pm
Patient Experience Data and Patient Insights Galleon Suites B & C
11:25AM - 11:50AM
Combining Patient Engagement and Patient Experience Data
Speakers:
Hayley Chapman, Senior Program Director, Patient-Focused Medicines Development (PFMD)
Anders Blaedel Lassen, Senior Director, Patient Insights, Lundbeck
11:50AM - 12:10PM
Patient Experience Data to Assess Tolerability of Products
Speaker:
Catherine Coulouvrat, MD, Head, Health Value Translation, R&D, Sanofi
12:10PM - 12:30PM
Harnessing Patient Engagement and Digital Innovation to Elevate Patient Insights and Outcomes
Speakers:
Agnete Bjerregaard Nielsen, Patient Insight and Intelligence Lead, Novo Nordisk
Claus Mark Nielsen, Patient Voice Engagement Lead, Novo Nordisk A/S
Showing Events in 1 Track from 12:30pm to 01:25pm
Lunch & Networking
12:30PM - 1:25PM
Lunch & Networking
Showing Events in 1 Track from 01:30pm to 03:10pm
Partnerships, Patient Insights and Managing Clinical Trial Protocol Complexity Galleon Suites B & C
1:30PM - 2:00PM
Multi Stakeholder Partnerships for the Benefit of Patients
Moderator:
Léa-Isabelle Proulx, MA, PhD, Patient Voice Partner, Strategy, Portfolio & Operations, Roche
Panelists:
Abigail Amit, Regional Patient Engagement Lead EMEAC, Patient Innovation and Engagement, V&I Global Medical & Scientific Affairs, MSD
Tega Ayerume, MSc Clinical Trials (UCL) Graduate, Incoming PhD Candidate in Clinical Trial Methodology (QMUL), Cancer Clinical Trial Set-Up Specialist
Sarah Cross, PhD, Vice President, Global Head of Medical Affairs, Premier Research
Annie Gilbert, Global Patient and Site Engagement Lead, Boehringer Ingelheim
Tom McDonald, CEO, Clerkenwell Health
Angela Meade, Principal Research Scientist, MRC CTU, UCL, Director of Education, Institute of Clinical Trials & Methodology, UCL
2:00PM - 2:25PM
Mastering Protocol Complexity to Reduce Patient Burden
Speaker:
Léa-Isabelle Proulx, MA, PhD, Patient Voice Partner, Strategy, Portfolio & Operations, Roche
2:25PM - 2:50PM
Embedding Patient Archetypes in R&D: Taking a Tool from the Consumer World
Speaker:
Marisa Minetti, Patient Research Partner, Global Clinical Development, Chiesi Farmaceutici SpA
Kara Prosser, Director, Baringa
2:50PM - 3:10PM
Scaling Global Patient Insights: Practical Approaches for Drug Development
Speakers:
Jade Dennis, Executive Director, Patient Engagement, CoDesign, Eli Lilly and Company
William Dott, Director, R&D Patient Science, AstraZeneca
Emily Goldsher-Diamond, Advisory Manager, ZS
Showing Events in 1 Track from 03:10pm to 03:45pm
Afternoon Networking with Tea/Coffee and Biscuits
3:10PM - 3:45PM
Afternoon Networking with Tea/Coffee and Biscuits
Showing Events in 2 Tracks from 03:50pm to 04:30pm
Track 1: AI, Technology, Patient Insights & Minimal Resources Galleon Suites B & C
Track Chair:
Alfred Samuels, Patient, Advocate and Author
3:50PM - 4:10PM
Boehringer-Ingelheim on Incorporating AI for Patient-Centric Medicine Development
Speakers:
Sue Farrington, Chief Executive of Scleroderma & Raynaud’s UK (SRUK), President of the Federation of European Scleroderma Associations (FESCA)
Annie Gilbert, Global Patient and Site Engagement Lead, Boehringer Ingelheim
4:10PM - 4:30PM
How a Startup Biotech Despite Limited Resources Involved the Patient Community in Early Clinical Trials
Speakers:
Daniel Lewi, Parent to Child with GM2, Patient Advocate and Co-Founder, The CATS Foundation
Gisela Linthorst, Head of Patient Engagement and Advocacy, Azafaros
Track 2: Embedding Patient Engagement and Partnering with Patients to Understand Meaningful Value in Technologies Galleon Suite A
Track Chair:
Wafae Iraqi, PharmD, PhD, EMEA Patient Engagement Therapeutic Area Lead, Johnson & Johnson Innovative Medicine
3:50PM - 4:10PM
Embedding Patient Engagement in the R&D Process through Co-creation with a Patient R&D Board Case Study
Speaker:
Marta Garcia Manrique, PharmD, MBA, MPH, R&D. Chief Patient Officer, Servier
4:10PM - 4:30PM
Partnering with Patients to Understand What is of Meaningful Value in Technologies
Speaker:
Gillian MacLochlainn, Associate Director, Development Innovation, Regeneron
Showing Events in 1 Track from 04:30pm to 05:05pm
Patient Recruitment, Clinical Trial Matching and Community Engagement
4:30PM - 4:45PM
Rethinking Patient Recruitment: Patient Centric Screening Strategies for Faster, More Efficient Enrollment
Speaker:
Anna Zorawski, Vice President, Clinical Solutions, AutoCruitment
4:45PM - 4:55PM
Research Grid: AI Case Studies to Find the Right Patients Faster, Ensure Better Data, and Speed Up Research From Start to Finish
Speaker:
Amber Hill, PhD, Founder and CEO, Research Grid
4:55PM - 5:05PM
Community Engagement in Clinical Trials: Reflections Project
Speakers:
Sarah Cross, PhD, Vice President, Global Head of Medical Affairs, Premier Research
Victoria DiBiaso, MPH, VP, Head of Patient Informed Development & Health Value Translation, Sanofi
Showing Events in 1 Track from 05:05pm to 06:00pm
Networking Reception
5:05PM - 6:00PM
Networking Reception
Showing Events in 1 Track from 08:15am to 09:00am
Registration and Morning Remarks
Galleon Suites B & C
8:15AM - 8:50AM
Registration and Coffee/Tea
8:50AM - 9:00AM
Co-Chair Welcome
Co-Chairs:
Victoria DiBiaso, MPH, VP, Head of Patient Informed Development & Health Value Translation, Sanofi
Wafae Iraqi, PharmD, PhD, EMEA Patient Engagement Therapeutic Area Lead, Johnson & Johnson Innovative Medicine
Paul Isherwood, Senior Director, Patient Strategy and Insights, Parexel
Alfred Samuels, Patient, Advocate and Author
Showing Events in 1 Track from 09:00am to 10:55am
Patient Engagement & Preferences in Clinical Research
Galleon Suites B & C
9:00AM - 9:25AM
Transition from Patient Centricity to Integrated Patient Engagement
Speaker:
Victoria DiBiaso, MPH, VP, Head of Patient Informed Development & Health Value Translation, Sanofi
9:25AM - 9:50AM
Patient Keynote on How a Clinical Trial Saved a Life and What Industry Must Prioritize
Speaker:
Harry Verbunt, CPO, E-Patient, Patient Advocate, Cancer Connect
9:50AM - 10:00AM
Patient Physician Journey
Speaker:
Temi Olonisakin, MD, Patient, Advocate
Moderator:
Valerie Bowling, Director, Patients as Partners EU
10:00AM - 10:30AM
Patient Perspectives on their Fears and Preferences in Clinical Research
Moderated By:
Andrew Garvey, Global Patient Advocacy Lead, GSK
Panelists:
Daniel Newman, Patient, Advocate
Temi Olonisakin, MD, Patient, Advocate
Alfred Samuels, Patient, Advocate and Author
Harry Verbunt, CPO, E-Patient, Patient Advocate, Cancer Connect
10:30AM - 10:45AM
How to Integrate Patients Throughout Clinical Development
Speaker:
Paul Isherwood, Senior Director, Patient Strategy and Insights, Parexel
10:45AM - 10:55AM
Patient Burden-Reducing Solutions and Technologies, An Audience “Pop-Up” Session
Moderated by:
Valerie Bowling, Director, Patients as Partners EU
Showing Events in 1 Track from 10:55am to 11:25am
Morning Networking with Tea/Coffee and Biscuits
10:55AM - 11:25AM
Morning Networking with Tea/Coffee and Biscuits
Showing Events in 1 Track from 11:25am to 12:30pm
Patient Experience Data and Patient Insights
Galleon Suites B & C
11:25AM - 11:50AM
Combining Patient Engagement and Patient Experience Data
Speakers:
Hayley Chapman, Senior Program Director, Patient-Focused Medicines Development (PFMD)
Anders Blaedel Lassen, Senior Director, Patient Insights, Lundbeck
11:50AM - 12:10PM
Patient Experience Data to Assess Tolerability of Products
Speaker:
Catherine Coulouvrat, MD, Head, Health Value Translation, R&D, Sanofi
12:10PM - 12:30PM
Harnessing Patient Engagement and Digital Innovation to Elevate Patient Insights and Outcomes
Speakers:
Agnete Bjerregaard Nielsen, Patient Insight and Intelligence Lead, Novo Nordisk
Claus Mark Nielsen, Patient Voice Engagement Lead, Novo Nordisk A/S
Showing Events in 1 Track from 12:30pm to 01:25pm
Lunch & Networking
12:30PM - 1:25PM
Lunch & Networking
Showing Events in 1 Track from 01:30pm to 03:10pm
Partnerships, Patient Insights and Managing Clinical Trial Protocol Complexity
Galleon Suites B & C
1:30PM - 2:00PM
Multi Stakeholder Partnerships for the Benefit of Patients
Moderator:
Léa-Isabelle Proulx, MA, PhD, Patient Voice Partner, Strategy, Portfolio & Operations, Roche
Panelists:
Abigail Amit, Regional Patient Engagement Lead EMEAC, Patient Innovation and Engagement, V&I Global Medical & Scientific Affairs, MSD
Tega Ayerume, MSc Clinical Trials (UCL) Graduate, Incoming PhD Candidate in Clinical Trial Methodology (QMUL), Cancer Clinical Trial Set-Up Specialist
Sarah Cross, PhD, Vice President, Global Head of Medical Affairs, Premier Research
Annie Gilbert, Global Patient and Site Engagement Lead, Boehringer Ingelheim
Tom McDonald, CEO, Clerkenwell Health
Angela Meade, Principal Research Scientist, MRC CTU, UCL, Director of Education, Institute of Clinical Trials & Methodology, UCL
2:00PM - 2:25PM
Mastering Protocol Complexity to Reduce Patient Burden
Speaker:
Léa-Isabelle Proulx, MA, PhD, Patient Voice Partner, Strategy, Portfolio & Operations, Roche
2:25PM - 2:50PM
Embedding Patient Archetypes in R&D: Taking a Tool from the Consumer World
Speaker:
Marisa Minetti, Patient Research Partner, Global Clinical Development, Chiesi Farmaceutici SpA
Kara Prosser, Director, Baringa
2:50PM - 3:10PM
Scaling Global Patient Insights: Practical Approaches for Drug Development
Speakers:
Jade Dennis, Executive Director, Patient Engagement, CoDesign, Eli Lilly and Company
William Dott, Director, R&D Patient Science, AstraZeneca
Emily Goldsher-Diamond, Advisory Manager, ZS
Showing Events in 1 Track from 03:10pm to 03:45pm
Afternoon Networking with Tea/Coffee and Biscuits
3:10PM - 3:45PM
Afternoon Networking with Tea/Coffee and Biscuits
Showing Events in 2 Tracks from 03:50pm to 04:30pm
Track 1: AI, Technology, Patient Insights & Minimal Resources
Galleon Suites B & C
Track Chair:
Alfred Samuels, Patient, Advocate and Author
3:50PM - 4:10PM
Boehringer-Ingelheim on Incorporating AI for Patient-Centric Medicine Development
Speakers:
Sue Farrington, Chief Executive of Scleroderma & Raynaud’s UK (SRUK), President of the Federation of European Scleroderma Associations (FESCA)
Annie Gilbert, Global Patient and Site Engagement Lead, Boehringer Ingelheim
4:10PM - 4:30PM
How a Startup Biotech Despite Limited Resources Involved the Patient Community in Early Clinical Trials
Speakers:
Daniel Lewi, Parent to Child with GM2, Patient Advocate and Co-Founder, The CATS Foundation
Gisela Linthorst, Head of Patient Engagement and Advocacy, Azafaros
Track 2: Embedding Patient Engagement and Partnering with Patients to Understand Meaningful Value in Technologies
Galleon Suite A
Track Chair:
Wafae Iraqi, PharmD, PhD, EMEA Patient Engagement Therapeutic Area Lead, Johnson & Johnson Innovative Medicine
3:50PM - 4:10PM
Embedding Patient Engagement in the R&D Process through Co-creation with a Patient R&D Board Case Study
Speaker:
Marta Garcia Manrique, PharmD, MBA, MPH, R&D. Chief Patient Officer, Servier
4:10PM - 4:30PM
Partnering with Patients to Understand What is of Meaningful Value in Technologies
Speaker:
Gillian MacLochlainn, Associate Director, Development Innovation, Regeneron
Showing Events in 1 Track from 04:30pm to 05:05pm
Patient Recruitment, Clinical Trial Matching and Community Engagement
4:30PM - 4:45PM
Rethinking Patient Recruitment: Patient Centric Screening Strategies for Faster, More Efficient Enrollment
Speaker:
Anna Zorawski, Vice President, Clinical Solutions, AutoCruitment
4:45PM - 4:55PM
Research Grid: AI Case Studies to Find the Right Patients Faster, Ensure Better Data, and Speed Up Research From Start to Finish
Speaker:
Amber Hill, PhD, Founder and CEO, Research Grid
4:55PM - 5:05PM
Community Engagement in Clinical Trials: Reflections Project
Speakers:
Sarah Cross, PhD, Vice President, Global Head of Medical Affairs, Premier Research
Victoria DiBiaso, MPH, VP, Head of Patient Informed Development & Health Value Translation, Sanofi
Showing Events in 1 Track from 05:05pm to 06:00pm
Networking Reception
5:05PM - 6:00PM
Networking Reception
Previous
Day 1
Tuesday, May 20, 2025

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