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Patients as Partners Europe

Date: May 20, 2025 - May 21, 2025

Location: London, UK

Day 1: Tuesday, May 20, 2025
Showing Events in 1 Track from 08:15am to 09:00am
Morning Remarks
8:15AM - 8:50AM
Registration
8:50AM - 9:00AM
Co-Chair Welcome
Co-Chairs:
Victoria DiBiaso, MPH, VP, Head of Patient Informed Development & Health Value Translation, Sanofi
Wafae Iraqi, PharmD, PhD, EMEA, Therapeutic Area Patient Engagement Lead, Johnson & Johnson Innovative Medicine
Paul Isherwood, Senior Director, Patient Strategy and Insights, Parexel
Alfred Samuels, Patient, Advocate and Author
Showing Events in 1 Track from 09:00am to 11:00am
Patient Engagement & Preferences in Clinical Research
9:00AM - 9:25AM
Transition from Patient Centricity to Integrated Patient Engagement
Speaker:
Victoria DiBiaso, MPH, VP, Head of Patient Informed Development & Health Value Translation, Sanofi
9:25AM - 9:50AM
Patient Keynote on How a Clinical Trial Saved a Life and What Industry Must Prioritize
Speaker:
Harry Verbunt, CPO, E-Patient, Patient Advocate, Cancer Connect
9:50AM - 10:30AM
Patient Perspectives on their Fears and Preferences in Clinical Research
Moderated By:
Andrew Garvey, Global Patient Advocacy Lead, GSK
Panelists:
Daniel Newman, Patient, Advocate
Temi Olonisakin, MD, Patient, Advocate
Alfred Samuels, Patient, Advocate and Author
Harry Verbunt, CPO, E-Patient, Patient Advocate, Cancer Connect
10:30AM - 10:45AM
How to Integrate Patients Throughout Clinical Development
Speaker:
Paul Isherwood, Senior Director, Patient Strategy and Insights, Parexel
10:45AM - 11:00AM
Patient Burden-Reducing Solutions and Technologies, An Audience “Pop-Up” Session
Showing Events in 1 Track from 11:00am to 11:35am
Networking Break
11:00AM - 11:35AM
Networking Break
Showing Events in 1 Track from 11:35am to 12:40pm
Patient Experience Data
11:35AM - 12:00PM
Combining Patient Engagement and Patient Experience Data
Speakers:
Hayley Chapman, Senior Program Director, Patient-Focused Medicines Development (PFMD)
Anders Blaedel Lassen, Senior Director, Patient Insights, Lundbeck
12:00PM - 12:20PM
Patient Experience Data to Assess Tolerability of Products
Speaker:
Catherine Coulouvrat, MD, Head, Health Value Translation, R&D, Sanofi
12:20PM - 12:40PM
Harnessing Patient Engagement and Digital Innovation to Elevate Patient Insights and Outcomes
Speaker:
Jannie Laursen, Head of Strategy and Operations, Novo Nordisk
Showing Events in 1 Track from 12:40pm to 01:40pm
Lunch & Networking
12:40PM - 1:40PM
Lunch & Networking
Showing Events in 1 Track from 01:40pm to 03:05pm
Managing Clinical Trial Protocol Complexity
1:40PM - 2:10PM
Partnering with CROs and Sites for the Benefit of Patients Panel
Moderator:
Léa-Isabelle Proulx, Patient Voice Partner, Strategy, Portfolio & Operations, Roche
Panelists:
Sarah Cross, PhD, Vice President, Global Head of Medical Affairs, Premier Research
Annie Gilbert, Global Patient and Site Engagement Lead, Boehringer Ingelheim
2:10PM - 2:30PM
Mastering Protocol Complexity to Reduce Patient Burden
Speaker:
Léa-Isabelle Proulx, Patient Voice Partner, Strategy, Portfolio & Operations, Roche
2:30PM - 2:50PM
Helping Study Teams in the Development of Study Protocols
Speaker:
Marisa Minetti, Patient Research Partner, Global Clinical Development, Chiesi Farmaceutici SpA
2:50PM - 3:05PM
Interactive Session with ZS
Showing Events in 1 Track from 03:05pm to 03:40pm
Afternoon Networking & Tea Break
3:05PM - 3:40PM
Afternoon Networking & Tea Break
Showing Events in 1 Track from 03:45pm to 04:30pm
Breakout Choices
3:45PM - 4:30PM
Breakout Choices
Showing Events in 2 Tracks from 03:45pm to 04:35pm
Breakout A: AI, Technology, Patient Insights & Minimal Resources
3:45PM - 4:05PM
Boehringer-Ingelheim on Incorporating AI for Patient-Centric Medicine Development
Speakers:
Sue Farrington, Chief Executive of Scleroderma & Raynaud’s UK (SRUK), President of the Federation of European Scleroderma Associations (FESCA)
Annie Gilbert, Global Patient and Site Engagement Lead, Boehringer Ingelheim
4:05PM - 4:25PM
How a Startup Biotech Despite Limited Resources Involved the Patient Community in Early Clinical Trials
Speakers:
Daniel Lewi, Parent to Child with GM2, Patient Advocate and Co-Founder, The CATS Foundation
Gisela Linthorst, Head of Patient Engagement and Advocacy, Azafaros
4:25PM - 4:35PM
Research Grid: AI Case Studies to Find the Right Patients Faster, Ensure Better Data, and Speed Up Research From Start to Finish
Speaker:
Amber Hill, PhD, Founder and CEO, Research Grid
Breakout B: Embedding Patient Engagement and Partnering with Patients to Understand Meaningful Value in Technologies
3:45PM - 4:05PM
Embedding Patient Engagement in the R&D Process through Co-creation with a Patient R&D Board Case Study
Speaker:
Marta Garcia Manrique, PharmD, MBA, MPH, R&D. Chief Patient Officer, Servier
4:05PM - 4:25PM
Partnering with Patients to Understand What is of Meaningful Value in Technologies
Speaker:
Gillian MacLochlainn, Associate Director, Development Innovation, Regeneron
Showing Events in 1 Track from 05:15pm to 06:30pm
Networking Reception
5:15PM - 6:30PM
Networking Reception
Showing Events in 1 Track from 08:15am to 09:00am
Morning Remarks
8:15AM - 8:50AM
Registration
8:50AM - 9:00AM
Co-Chair Welcome
Co-Chairs:
Victoria DiBiaso, MPH, VP, Head of Patient Informed Development & Health Value Translation, Sanofi
Wafae Iraqi, PharmD, PhD, EMEA, Therapeutic Area Patient Engagement Lead, Johnson & Johnson Innovative Medicine
Paul Isherwood, Senior Director, Patient Strategy and Insights, Parexel
Alfred Samuels, Patient, Advocate and Author
Showing Events in 1 Track from 09:00am to 11:00am
Patient Engagement & Preferences in Clinical Research
9:00AM - 9:25AM
Transition from Patient Centricity to Integrated Patient Engagement
Speaker:
Victoria DiBiaso, MPH, VP, Head of Patient Informed Development & Health Value Translation, Sanofi
9:25AM - 9:50AM
Patient Keynote on How a Clinical Trial Saved a Life and What Industry Must Prioritize
Speaker:
Harry Verbunt, CPO, E-Patient, Patient Advocate, Cancer Connect
9:50AM - 10:30AM
Patient Perspectives on their Fears and Preferences in Clinical Research
Moderated By:
Andrew Garvey, Global Patient Advocacy Lead, GSK
Panelists:
Daniel Newman, Patient, Advocate
Temi Olonisakin, MD, Patient, Advocate
Alfred Samuels, Patient, Advocate and Author
Harry Verbunt, CPO, E-Patient, Patient Advocate, Cancer Connect
10:30AM - 10:45AM
How to Integrate Patients Throughout Clinical Development
Speaker:
Paul Isherwood, Senior Director, Patient Strategy and Insights, Parexel
10:45AM - 11:00AM
Patient Burden-Reducing Solutions and Technologies, An Audience “Pop-Up” Session
Showing Events in 1 Track from 11:00am to 11:35am
Networking Break
11:00AM - 11:35AM
Networking Break
Showing Events in 1 Track from 11:35am to 12:40pm
Patient Experience Data
11:35AM - 12:00PM
Combining Patient Engagement and Patient Experience Data
Speakers:
Hayley Chapman, Senior Program Director, Patient-Focused Medicines Development (PFMD)
Anders Blaedel Lassen, Senior Director, Patient Insights, Lundbeck
12:00PM - 12:20PM
Patient Experience Data to Assess Tolerability of Products
Speaker:
Catherine Coulouvrat, MD, Head, Health Value Translation, R&D, Sanofi
12:20PM - 12:40PM
Harnessing Patient Engagement and Digital Innovation to Elevate Patient Insights and Outcomes
Speaker:
Jannie Laursen, Head of Strategy and Operations, Novo Nordisk
Showing Events in 1 Track from 12:40pm to 01:40pm
Lunch & Networking
12:40PM - 1:40PM
Lunch & Networking
Showing Events in 1 Track from 01:40pm to 03:05pm
Managing Clinical Trial Protocol Complexity
1:40PM - 2:10PM
Partnering with CROs and Sites for the Benefit of Patients Panel
Moderator:
Léa-Isabelle Proulx, Patient Voice Partner, Strategy, Portfolio & Operations, Roche
Panelists:
Sarah Cross, PhD, Vice President, Global Head of Medical Affairs, Premier Research
Annie Gilbert, Global Patient and Site Engagement Lead, Boehringer Ingelheim
2:10PM - 2:30PM
Mastering Protocol Complexity to Reduce Patient Burden
Speaker:
Léa-Isabelle Proulx, Patient Voice Partner, Strategy, Portfolio & Operations, Roche
2:30PM - 2:50PM
Helping Study Teams in the Development of Study Protocols
Speaker:
Marisa Minetti, Patient Research Partner, Global Clinical Development, Chiesi Farmaceutici SpA
2:50PM - 3:05PM
Interactive Session with ZS
Showing Events in 1 Track from 03:05pm to 03:40pm
Afternoon Networking & Tea Break
3:05PM - 3:40PM
Afternoon Networking & Tea Break
Showing Events in 1 Track from 03:45pm to 04:30pm
Breakout Choices
3:45PM - 4:30PM
Breakout Choices
Showing Events in 2 Tracks from 03:45pm to 04:35pm
Breakout A: AI, Technology, Patient Insights & Minimal Resources
3:45PM - 4:05PM
Boehringer-Ingelheim on Incorporating AI for Patient-Centric Medicine Development
Speakers:
Sue Farrington, Chief Executive of Scleroderma & Raynaud’s UK (SRUK), President of the Federation of European Scleroderma Associations (FESCA)
Annie Gilbert, Global Patient and Site Engagement Lead, Boehringer Ingelheim
4:05PM - 4:25PM
How a Startup Biotech Despite Limited Resources Involved the Patient Community in Early Clinical Trials
Speakers:
Daniel Lewi, Parent to Child with GM2, Patient Advocate and Co-Founder, The CATS Foundation
Gisela Linthorst, Head of Patient Engagement and Advocacy, Azafaros
4:25PM - 4:35PM
Research Grid: AI Case Studies to Find the Right Patients Faster, Ensure Better Data, and Speed Up Research From Start to Finish
Speaker:
Amber Hill, PhD, Founder and CEO, Research Grid
Breakout B: Embedding Patient Engagement and Partnering with Patients to Understand Meaningful Value in Technologies
3:45PM - 4:05PM
Embedding Patient Engagement in the R&D Process through Co-creation with a Patient R&D Board Case Study
Speaker:
Marta Garcia Manrique, PharmD, MBA, MPH, R&D. Chief Patient Officer, Servier
4:05PM - 4:25PM
Partnering with Patients to Understand What is of Meaningful Value in Technologies
Speaker:
Gillian MacLochlainn, Associate Director, Development Innovation, Regeneron
Showing Events in 1 Track from 05:15pm to 06:30pm
Networking Reception
5:15PM - 6:30PM
Networking Reception
Previous
Day 1
Tuesday, May 20, 2025

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