Patients as Partners Europe Agenda 2026 Page 1

Day 1: Tuesday, May 20, 2025

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Showing Events in 1 Track from 08:15am to 09:00am

Registration and Morning Remarks
Galleon Suites B & C

8:15AM - 8:50AM

Registration and Coffee/Tea

8:50AM - 9:00AM

Co-Chair Welcome

Co-Chairs:

Victoria DiBiaso, MPH, VP, Head of Patient Informed Development & Health Value Translation, Sanofi

Wafae Iraqi, PharmD, PhD, EMEA Patient Engagement Therapeutic Area Lead, Johnson & Johnson Innovative Medicine

Paul Isherwood, Senior Director, Patient Strategy and Insights, Parexel

Alfred Samuels, Patient, Advocate and Author

Showing Events in 1 Track from 09:00am to 10:55am

Patient Engagement & Preferences in Clinical Research
Galleon Suites B & C

9:00AM - 9:25AM

Transition from Patient Centricity to Integrated Patient Engagement

Speaker:

Victoria DiBiaso, MPH, VP, Head of Patient Informed Development & Health Value Translation, Sanofi

9:25AM - 9:50AM

Patient Keynote on How a Clinical Trial Saved a Life and What Industry Must Prioritize

Speaker:

Harry Verbunt, CPO, E-Patient, Patient Advocate, Cancer Connect

9:50AM - 10:00AM

Patient Physician Journey

Speaker:

Temi Olonisakin, MD, Patient, Advocate

Moderator:

Valerie Bowling, Director, Patients as Partners EU

10:00AM - 10:30AM

Patient Perspectives on their Fears and Preferences in Clinical Research

Moderated By:

Andrew Garvey, Global Patient Advocacy Lead, GSK

Panelists:

Daniel Newman, Patient, Advocate

Temi Olonisakin, MD, Patient, Advocate

Alfred Samuels, Patient, Advocate and Author

Harry Verbunt, CPO, E-Patient, Patient Advocate, Cancer Connect

10:30AM - 10:45AM

How to Integrate Patients Throughout Clinical Development

Speaker:

Paul Isherwood, Senior Director, Patient Strategy and Insights, Parexel

10:45AM - 10:55AM

Patient Burden-Reducing Solutions and Technologies, An Audience “Pop-Up” Session

Moderated by:

Valerie Bowling, Director, Patients as Partners EU

Showing Events in 1 Track from 10:55am to 11:25am

Morning Networking with Tea/Coffee and Biscuits

10:55AM - 11:25AM

Morning Networking with Tea/Coffee and Biscuits

Showing Events in 1 Track from 11:25am to 12:30pm

Patient Experience Data and Patient Insights
Galleon Suites B & C

11:25AM - 11:50AM

Combining Patient Engagement and Patient Experience Data

Speakers:

Hayley Chapman, Senior Program Director, Patient-Focused Medicines Development (PFMD)

Anders Blaedel Lassen, Senior Director, Patient Insights, Lundbeck

11:50AM - 12:10PM

Patient Experience Data to Assess Tolerability of Products

Speaker:

Catherine Coulouvrat, MD, Head, Health Value Translation, R&D, Sanofi

12:10PM - 12:30PM

Harnessing Patient Engagement and Digital Innovation to Elevate Patient Insights and Outcomes

Speakers:

Agnete Bjerregaard Nielsen, Patient Insight and Intelligence Lead, Novo Nordisk

Claus Mark Nielsen, Patient Voice Engagement Lead, Novo Nordisk A/S

Showing Events in 1 Track from 12:30pm to 01:25pm

Lunch & Networking

12:30PM - 1:25PM

Lunch & Networking

Showing Events in 1 Track from 01:30pm to 03:10pm

Partnerships, Patient Insights and Managing Clinical Trial Protocol Complexity
Galleon Suites B & C

1:30PM - 2:00PM

Multi Stakeholder Partnerships for the Benefit of Patients

Moderator:

Léa-Isabelle Proulx, MA, PhD, Patient Voice Partner, Strategy, Portfolio & Operations, Roche

Panelists:

Abigail Amit, Regional Patient Engagement Lead EMEAC, Patient Innovation and Engagement, V&I Global Medical & Scientific Affairs, MSD

Tega Ayerume, MSc Clinical Trials (UCL) Graduate, Incoming PhD Candidate in Clinical Trial Methodology (QMUL), Cancer Clinical Trial Set-Up Specialist

Sarah Cross, PhD, Vice President, Global Head of Medical Affairs, Premier Research

Annie Gilbert, Global Patient and Site Engagement Lead, Boehringer Ingelheim

Tom McDonald, CEO, Clerkenwell Health

Angela Meade, Principal Research Scientist, MRC CTU, UCL, Director of Education, Institute of Clinical Trials & Methodology, UCL

2:00PM - 2:25PM

Mastering Protocol Complexity to Reduce Patient Burden

Speaker:

Léa-Isabelle Proulx, MA, PhD, Patient Voice Partner, Strategy, Portfolio & Operations, Roche

2:25PM - 2:50PM

Embedding Patient Archetypes in R&D: Taking a Tool from the Consumer World

Speaker:

Marisa Minetti, Patient Research Partner, Global Clinical Development, Chiesi Farmaceutici SpA

Kara Prosser, Director, Baringa

2:50PM - 3:10PM

Scaling Global Patient Insights: Practical Approaches for Drug Development

Speakers:

Jade Dennis, Executive Director, Patient Engagement, CoDesign, Eli Lilly and Company

William Dott, Director, R&D Patient Science, AstraZeneca

Emily Goldsher-Diamond, Advisory Manager, ZS

Showing Events in 1 Track from 03:10pm to 03:45pm

Afternoon Networking with Tea/Coffee and Biscuits

3:10PM - 3:45PM

Afternoon Networking with Tea/Coffee and Biscuits

Showing Events in 2 Tracks from 03:50pm to 04:30pm

Track 1: AI, Technology, Patient Insights & Minimal Resources
Galleon Suites B & C

Track Chair:

Alfred Samuels, Patient, Advocate and Author

3:50PM - 4:10PM

Boehringer-Ingelheim on Incorporating AI for Patient-Centric Medicine Development

Speakers:

Sue Farrington, Chief Executive of Scleroderma & Raynaud’s UK (SRUK), President of the Federation of European Scleroderma Associations (FESCA)

Annie Gilbert, Global Patient and Site Engagement Lead, Boehringer Ingelheim

4:10PM - 4:30PM

How a Startup Biotech Despite Limited Resources Involved the Patient Community in Early Clinical Trials

Speakers:

Daniel Lewi, Parent to Child with GM2, Patient Advocate and Co-Founder, The CATS Foundation

Gisela Linthorst, Head of Patient Engagement and Advocacy, Azafaros

Track 2: Embedding Patient Engagement and Partnering with Patients to Understand Meaningful Value in Technologies
Galleon Suite A

Track Chair:

Wafae Iraqi, PharmD, PhD, EMEA Patient Engagement Therapeutic Area Lead, Johnson & Johnson Innovative Medicine

3:50PM - 4:10PM

Embedding Patient Engagement in the R&D Process through Co-creation with a Patient R&D Board Case Study

Speaker:

Marta Garcia Manrique, PharmD, MBA, MPH, R&D. Chief Patient Officer, Servier

4:10PM - 4:30PM

Partnering with Patients to Understand What is of Meaningful Value in Technologies

Speaker:

Gillian MacLochlainn, Associate Director, Development Innovation, Regeneron

Showing Events in 1 Track from 04:30pm to 05:05pm

Patient Recruitment, Clinical Trial Matching and Community Engagement

4:30PM - 4:45PM

Rethinking Patient Recruitment: Patient Centric Screening Strategies for Faster, More Efficient Enrollment

Speaker:

Anna Zorawski, Vice President, Clinical Solutions, AutoCruitment

4:45PM - 4:55PM

Research Grid: AI Case Studies to Find the Right Patients Faster, Ensure Better Data, and Speed Up Research From Start to Finish

Speaker:

Amber Hill, PhD, Founder and CEO, Research Grid

4:55PM - 5:05PM

Community Engagement in Clinical Trials: Reflections Project

Speakers:

Sarah Cross, PhD, Vice President, Global Head of Medical Affairs, Premier Research

Victoria DiBiaso, MPH, VP, Head of Patient Informed Development & Health Value Translation, Sanofi

Showing Events in 1 Track from 05:05pm to 06:00pm

Networking Reception

5:05PM - 6:00PM

Networking Reception

Day 1

Tuesday, May 20, 2025

Day 2

Wednesday, May 21, 2025

Day 1

Day 2

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